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Anyone else out there with extremely high lipoprotein (a)?
Hi! I just found out that I have an extremely high lipoprotein (a) of 515 nmol/L. I'm terrified; it's that high. I'm 58 years old and my total cholesterol is 212. My LDL is 141, and my HDL is just 40. My cholesterol/HDL ratio is 5.3. Of course it's a long weekend and I may not be able to reach my doctor tomorrow. I have watched a couple of informational sessions online from various doctors discussing elevated LP(a), but no one mentions anything close to how high mine is. Is there anyone else out there with severely elevated Lp(a)? Thanking you in advance. Sue M.
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heavily plant based with some fish (tuna and salmon mostly) and perhaps 1 meal a week might have grilled chicken
Bio on the Graedons ... https://www.wunc.org/people/joe-terry-graedon
I've heard the show on NPR, but this article sounds as if it is written by a medical professional - it does not appear Joe Graedon, the author, fits this profile. He is a pharmacist or least trained as, and she is an anthropologist.
@saganjames, it looks as if the People's Pharmacy is centered around the sharing of experiences to help others make more informed decisions, much like Mayo Clinic Connect. When looking at the article you shared, it is a bit confusing in how it is presented as it does feel as though it is a Q&A with a medical professional which I do not believe the People's Pharmacy has as part of its broadcast and writing crew.
@saganjames, if you don't mind sharing, which part of the article did you find most interesting or helpful?
Please read:
https://www.peoplespharmacy.com/articles/is-lpa-contributing-to-unexplained-heart-attacks
Regards, Sagan
Mine is 329.1 Susan. You can read what happened to me in an earlier message. I am going to get in a study for Eli Lilly. I am hoping I don't get the placebo. It is for the drup Lepodisirin. So far it can bring lipoproteinA down 94%. Search for the studies online. I feel for me that is the best thing to do.
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2 ReactionsYes, but occasionally I have a piece of cake/pie on birthdays and holidays.
Are you still on a Vegan diet?
yes: between August before I started with the add-on Repatha (started in October) and my last blood test in February, my Lp(a) dropped 43%, now down to 82.
If it makes you feel any better, my test came back >600, so I don’t even know how high it is. It’s my understanding that we’re still a year away from a drug that specifically targets Lp(a)
For the first 2 injections we paid $500, for the next 4 it would be $700 ( doctor wasn’t very helpful in helping us to find a way that Medicare would pay) second we want to make sure that the high LPA isn’t a side effect from Repatha, he never before had it it so high.
After stopping Statins, it already dropped very quick.
So we will find out if it drops further on ( side effect) or Repatha worked,
In the last case, we will use Repatha again, we have a alternative cardiologist at home in Alaska.