Overview Evaluation of the European Reference Networks Work of the ERNs To review a patient’s diagnosis and treatment the members of an ERN consult, exchange information and share knowledge with other members in their… Networks The first 24 ERNs were launched in 2017, involving more than 900 highly-specialised healthcare units from over 300 hospitals in 26 Member States. Board of Member States The Board of Member States, as laid out in the European Commission implementing decision, was set up on 5 February 2014.The main tasks of the Board… ERNs and COVID-19 In the context of the fight against the coronavirus pandemic, the European Commission launched the COVID-19 Clinical Management Support System (CMSS)… Rare diseases Up to 36 million people in the EU live with a rare disease. There are more than 6000 distinct rare diseases in the EU. Latest updates News announcement 8 March 2024 Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseases 1 min read News announcement 29 February 2024 JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024) 1 min read News announcement 28 February 2024 Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger together 1 min read News announcement 16 February 2024 European Reference Networks: providing specialised support to Ukraine in the field of rare diseases 1 min read See all Highlights Information video for patients and healthcare professionals Status: Closed 2019 call for membership to the existing European Reference Networks (ERNs) European Reference Networks Newsletter General publications 21 November 2018 Directorate-General for Health and Food Safety Information flyer for patients and healthcare professionals Events 07Dec2023 Partner meetings Board of Member States on ERNs – Exceptional meeting 24Oct2023 Partner meetings Board of Member States on ERNs – 27th meeting 27Jun2023 Partner meetings Board of Member States on ERNs – 26th meeting 05Oct2022 Partner meetings Board of Member States on ERNs – 25th meeting Documents Key documents Events Consultations Publications Videos
Work of the ERNs To review a patient’s diagnosis and treatment the members of an ERN consult, exchange information and share knowledge with other members in their…
Networks The first 24 ERNs were launched in 2017, involving more than 900 highly-specialised healthcare units from over 300 hospitals in 26 Member States.
Board of Member States The Board of Member States, as laid out in the European Commission implementing decision, was set up on 5 February 2014.The main tasks of the Board…
ERNs and COVID-19 In the context of the fight against the coronavirus pandemic, the European Commission launched the COVID-19 Clinical Management Support System (CMSS)…
Rare diseases Up to 36 million people in the EU live with a rare disease. There are more than 6000 distinct rare diseases in the EU.
News announcement 8 March 2024 Commission launches joint action with €18 million funding to improve the diagnosis, treatment and care of patients with rare diseases 1 min read
News announcement 29 February 2024 JARDIN kick-off meeting - Rare Diseases in the EU: Joint Action shaping the future of ERNs (8 March 2024) 1 min read
News announcement 28 February 2024 Statement by Commissioner Kyriakides on the World Rare Disease Day - Stronger together 1 min read
News announcement 16 February 2024 European Reference Networks: providing specialised support to Ukraine in the field of rare diseases 1 min read
General publications 21 November 2018 Directorate-General for Health and Food Safety Information flyer for patients and healthcare professionals