Clinical Research Computing

Clinical Research Computing

A Practitioner's Handbook
2016, Pages 173-185
Clinical Research Computing

Chapter 9 - Clinical Data Repositories: Warehouses, Registries, and the Use of Standards

https://doi.org/10.1016/B978-0-12-803130-8.00009-9 Get rights and content

Abstract

This chapter describes different kinds of data repositories: operational data stores (ODSs), clinical data warehouses, clinical data marts, and clinical registries. The purpose of the ODS is to serve as a location for the processes of extraction, transfer, and load prior to creating a warehouse or data marts, both of which are physically integrated databases optimized for rapid query. Virtual data integration or federation is not recommended unless political realities make physical integration infeasible. Registries are repositories that limit their contents to patients with specific disease conditions: their formats are often archaic, reflecting their long existence. The act of creating warehouses or marts may paradoxically make reporting and data extraction needs increase. It is important to set end-users’ expectations by identifying limitations in the quality of the data sources. It is important to map data elements during warehousing if only to increase the usability of the resulting system.

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