LifeArc

Our chairman Ian Gilham and I met with HRH Duchess of Edinburgh and others including Graeme Souness to learn about approaches to tackling the devastating rare skin condition EB, including drug repurposing. Thanks to DEBRA UK for a lovely lunch. 

Today’s announcement highlights the urgent need for investment and scientific support to address the global threat of antimicrobial resistance.   We are pleased to see PACE-AMR recognised as a key contributor to the UK AMR landscape, and the role that our partnership is playing in supporting innovations and overcoming barriers to address unmet needs in AMR.   This action plan reinforces and strengthens the UK’s leading role in addressing AMR, and we will continue to support this vision through PACE and our AMR Translational Challenge. Find out more about LifeArc’s work in AMR: https://lnkd.in/g-9-ZRUH

Have you, or someone you know, been affected by motor neuron disease (MND)? We'd like to understand what you think potential new drugs for MND should look like, through this short survey: https://t.ly/ZBzGA The MND Insights Community Survey is open to anyone who fits one or more of the following criteria: ▪ Those living with MND ▪ Caregivers or supporters for someone with MND ▪ People who have lost someone close to MND ▪ Those with a gene that puts them at a high risk of developing MND, or those who have a family history of the condition LifeArc's mission is to uncover the most important research questions and urgently address the needs of MND research. The real experts are those people affected by the condition – so we'd love to hear from you! Thanks for your support, and for taking the time to complete the survey. My Name'5 Doddie Foundation MND Scotland Motor Neurone Disease (MND) Association

As things settle down after the Translational Science Summit, we're reflecting on all of the amazing sessions that took place throughout the day. We've pulled together some key takeaways about translational science in the UK from some of the main sessions – just a snippet from a jam-packed day! These are: - Collaboration is key - Be bold, ambitious and innovative - Getting regulation right is essential - The UK can become the go-to place for clinical trials - We need to unite to deliver impact for the patients - Fail to prepare, prepare to fail - Being proactive and pro-innovation can unleash UK life sciences Read more in our latest blog: https://shorturl.at/nqxIS

Today is #WorldAsthmaDay 💜 This year’s theme “Asthma Education Empowers” resonates deeply with us at Asthma + Lung UK. We believe that understanding asthma triggers and learning how to effectively deal with them can help people take control of their lung health. Everyone with asthma has their own set of asthma triggers, and what sets off your symptoms, might not set off someone else’s. It’s important to know what your triggers are so that you can avoid them if possible. To support this, we’ve created an infographic highlighting asthma triggers that can set off asthma symptoms. From pollen to air pollution, it sheds light on what can worsen asthma symptoms, empowering people to make informed choices about their environment and lifestyle. Remember, there are many other asthma triggers than those listed, we encourage also visiting our website for a detailed guide: https://bit.ly/3UwAEfR That’s not all. Did you know we have free downloadable asthma action plans? These personalised plans which you complete with your healthcare professional can be invaluable tools in managing asthma effectively, ensuring knowledge of what steps you need to take to keep your symptoms under control and what to do if you have an asthma attack: https://bit.ly/3JJLPLH 🤝 Let’s come together this World Asthma Day to raise awareness, educate and empower. Together, we can make a difference in the lives of those living with asthma 💜 #WorldAsthmaDay #AsthmaEducationEmpowers #AsthmaAwareness

Another extraordinary week at LifeArc, with the creation of four new LifeArc Translational Centres for Rare Diseases and the first ever LifeArc Translational Science Summit. Both milestones demonstrate the fundamental importance of translational research and its impact on patients, and underline LifeArc’s unique role as a partner for innovation and research. My gratitude goes to our many great teams at LifeArc who made these developments possible, and to the exceptional speakers and delegates for making the summit such a success with inspiring sessions, insightful panels and moving presentations. #LATSS2024

We're still buzzing from the Translational Science Summit. It was incredible to see so many people come together for a day of all things translational science. We've been blown away by all the positive feedback! We'd like to thank all of our incredible speakers for their inspiring and insightful presentations and of course our attendees for your enthusiasm. Together, we made the event a resounding success. For those who missed any sessions or wish to revisit them, recordings of most of the talks will be available on YouTube soon – we'll let you know when they're ready to view. #LATSS2024

That's a wrap on #LATSS2024! Seeing over 700 scientists, experts, policy makers and innovators together discussing translation and life sciences was powerful. There were some fascinating presentations and insightful discussions, and we loved connecting with so many of you. Thank you to all our attendees and to our exceptional speakers for making the day such a success. We look forward to seeing you again next year!

We're excited to announce that we're launching 4 Translational Centres for Rare Diseases! These centres aim to improve diagnostics, encourage new collaborations across disparate research disciplines, bring together leading scientists and unlock new tests, treatments and cures for more than 300 million people living with rare diseases globally. The centres include: 1️⃣ LifeArc Centre for Rare Respiratory Diseases - To create a UK-wide biobank of patient samples and models of disease to enable the advancement of pioneering therapies, and engage with industry and regulatory partners to develop innovative human clinical studies. 2️⃣ LifeArc Kidney Research UK Centre for Rare Kidney Diseases - To unite researchers and patients and build on strongly established resources to improve access to treatments and patient outcomes. 3️⃣ LifeArc Centre for Rare Mitochondrial Diseases - To establish a national platform that will connect patient groups, knowledge and infrastructure to accelerate new treatments getting to clinical trial. 4️⃣ LifeArc Centre for Acceleration of Rare Disease Trials - To improve the efficiency of rare disease trials and increase the number of opportunities for patients to take part. For more details, you can read the full press release here: https://t.ly/YcO-U #GlobalHealth Kidney Research UK, Muscular Dystrophy UK, The Lily Foundation

The Translational Science Summit has begun! Over 800 people are here in person to discuss all things translation and life sciences. Follow the day and share your thoughts over on Twitter/X using #LATSS2024 - https://lnkd.in/eVq3W9wP