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Research article
First published October 2005

Thematic Evidence of Psychosocial Thriving in Childhood Cancer Survivors

Carla Parry and Mark A. CheslerView all authors and affiliations
Volume 15, Issue 8
https://doi.org/10.1177/1049732305277860

Abstract

Advances in medical treatment for childhood cancer have resulted in dramatically increased survival rates and a growing population of long-term survivors. Until recently, researchers reported primarily negative psychosocial sequelae of childhood cancer. Emergent conceptual frameworks propose that the assumption of pathology or long-term deficits in functioning might obscure an understanding of the full range of outcomes. Using qualitative interview data (N = 50), the authors explore how cancer can lead to positive psychosocial outcomes, including thriving. The findings suggest that processes of coping, meaning making, and psychospiritual growth are intimately related to long-term psychosocial well-being. The results suggest that in the aftermath of a trauma such as childhood cancer, many outcomes are possible, including thriving.

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1.
1. Longitudinal studies of cancer survivorship, which are extremely rare, would also be useful in helping us understand the relationship between process and outcome by allowing us to observe how processes of coping, healing, and thriving unfold over time.
2.
2. As part of this study, we were also able to use the medical records data, which provided us with detailed medical information about our respondents (diagnosis, treatment, relapse, etc.). This information was valuable in confirming the representativeness of the survey sample (Parry, 2002)compared with the hospital’s overall population of childhood cancer survivors.
3.
3. It became clear that the distinction between the psychological and spiritual or existential domains was somewhat artificial to many survivors and that it was difficult to disentangle psychological changes from spiritual or existential changes because of the ways in which survivors wove them together in their narratives. This led to our focus on psychospiritual change.
4.
4. In Erikson’s (1959) linear notions of development, we can conceptualize this maturity as part of the process of stepping off the trajectory and skipping stages.
5.
5. Although a few survivors had no tangible aftereffects, the physical aftereffects experienced by this group included surgical scars, balding, potential infertility, hepatitis C, thyroid and salivary gland abnormalities, musculoskeletal deformity, lung damage, weight gain, limb amputations, a prosthetic eye, learning disabilities, seizures, sleep problems, fatigue, and memory deficits. Even many of those survivors with noticeable physical aftereffects felt that the physical aftereffects did not interfere with their lives or happiness in ways that they considered significant.
6.
6. It might also explain the difference between these findings and findings of more negative outcomes in other research, which uses samples of survivors more recently diagnosed and treated for cancer (Kazak et al., 1997; Madan-Swain et al., 2000; Richardson et al., 1999).

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Published In

Volume 15, Issue 8
Pages: 1055 - 1073
Article first published: October 2005
Issue published: October 2005

Keywords

  1. thriving
  2. psychosocial
  3. resilience
  4. cancer survivorship
  5. childhood cancer

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PubMed: 16221879

Authors

Affiliations

Carla Parry
University of Colorado Health Sciences Center, Denver
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Mark A. Chesler
University of Michigan, Ann Arbor
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